Posts

There is a tremendous ignorance about real world realities of LMIC

Amongst HIC partners. I was interested (amused?) To see a survey yesterday in C4K asking how often we used MIBG scans to assess neuroblastoma response. The MIBG conjugated radioisotope for imaging is virtually unavailable in India so everyone uses PET-CT scanning. Our colleagues in Armenia send their patients to Russia if they really yearn for an MIBG scan. And I think the same story plays out across many LMIC and there are countries where even PET-CT scan is an unaffordable luxury. Part of me is glad we are trying to understand these real world issues, but why has it taken till 2021 to do so?

An information flood, and the ongoing relevance of mentoring

So one thing that is slowly becoming clear to me, interacting with practitioners from both LMIC and HIC in SIOP Global Health, is that the greatest need for PHO champions in LMIC is time-efficient support for their needs, ie old-fashioned mentoring to help curate the flood of online PHO information. The primary way this process will differ from "twinning" institutions is it will partner individuals. Accordingly, as soon as I get word about my co-Chair, we will begin the task of creating a list of partnering individuals (and confirming existing partnerships), and should have that completed by the end of Q3. 

And what we can do...

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So there is a definite enthusiasm to contribute, in whatever way. We had one member willing to step up as co-Chair, Nihad and I approve and have forwarded the expression of interest to Saghir and Michael. Given how much else is going on in other areas of SIOP Global and WHO-GICC we will stay with quarterly meetings for now and schedule our next one towards the end of July.

Who we are....

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So out of 22 members who had the time (or made the time) to respond, this is who we are. I'm not sure how much I can read into this given the sample size, but a lot of physicians with prolonged commitment to our mission.

Why I don't attend GNN

The title is deliberately provocative, first of all I should point out that Kate Matthay and Scott Howard have created a wonderful resource in the Global Neuroblastoma Network. As the Chair of the Neuroblastoma Committee of InPOG I can and should learn a lot from attending the meetings, but what I lack is time. In 2020 my Hospital in Varanasi India registered 475 new children with cancer. Even excluding patients who abandoned treatment (13%) or died from disease/infection (13%), this still left over 300 children from last year alone receiving active treatment. I am extremely fortunate to have an experienced team of two residents from Tata, along with two more hired locally, and a team of well trained nurses backed by the resources of Tata Memorial, but when I am exhausted at the end of the day I just don't want to attend another webinar! So while working with POINTE and providing resources is a valid goal of this group, maybe our primary goal should be ensuring that local champions

The way forward! :)

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the role of POINTE

POINTE website  is the Paediatric Oncology International Network for Training and Education (I had to guess what it stood for!) that works closely with SIOP Global Health and stores a multitude of resources that could help practitioners in LMIC.