The way forward! :)

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There is a tremendous ignorance about real world realities of LMIC

Amongst HIC partners. I was interested (amused?) To see a survey yesterday in C4K asking how often we used MIBG scans to assess neuroblastoma response. The MIBG conjugated radioisotope for imaging is virtually unavailable in India so everyone uses PET-CT scanning. Our colleagues in Armenia send their patients to Russia if they really yearn for an MIBG scan. And I think the same story plays out across many LMIC and there are countries where even PET-CT scan is an unaffordable luxury. Part of me is glad we are trying to understand these real world issues, but why has it taken till 2021 to do so?
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Who we are....

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So out of 22 members who had the time (or made the time) to respond, this is who we are. I'm not sure how much I can read into this given the sample size, but a lot of physicians with prolonged commitment to our mission.
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Why I don't attend GNN

The title is deliberately provocative, first of all I should point out that Kate Matthay and Scott Howard have created a wonderful resource in the Global Neuroblastoma Network. As the Chair of the Neuroblastoma Committee of InPOG I can and should learn a lot from attending the meetings, but what I lack is time. In 2020 my Hospital in Varanasi India registered 475 new children with cancer. Even excluding patients who abandoned treatment (13%) or died from disease/infection (13%), this still left over 300 children from last year alone receiving active treatment. I am extremely fortunate to have an experienced team of two residents from Tata, along with two more hired locally, and a team of well trained nurses backed by the resources of Tata Memorial, but when I am exhausted at the end of the day I just don't want to attend another webinar! So while working with POINTE and providing resources is a valid goal of this group, maybe our primary goal should be ensuring that local champions...
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